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A three-kilometre accessible walk from Lower Moora Park opens International EB Awareness Week this Sunday, 25 October.
Along the Sandgate and Shorncliffe coastline, a community walk this Sunday morning will shine a light on a rare and painful skin condition.
On Sunday 25 October, locals are invited to take part in Brisbane’s Walk for Wings, an accessible community event raising vital funds and visibility for Epidermolysis Bullosa (EB). The morning marks the opening of International EB Awareness Week, running from 25 to 31 October.
Often referred to as “butterfly skin,” EB is a rare genetic disorder that leaves the skin unimaginably fragile. For those living with the condition, even minimal friction or movement can cause painful blistering and open wounds—turning routine daily rituals like dressing, playing, or simply walking into acts requiring meticulous planning and care.
“EB affects far more than the skin,” says Simone Baird, National Family Support Coordinator at DEBRA Australia. “Families are managing wound care, pain and the practical challenges of everyday life, while also dealing with the emotional impact of living with a rare and complex condition. Walk for Wings is a chance for the community to come together to raise awareness of EB.”
Brisbane’s three-kilometre course begins at Lower Moora Park near Shorncliffe Pier. Participants will head north along the foreshore path towards Sandgate before looping back to walk the length of the historic pier and return. The fully accessible route welcomes walkers of all ages and abilities, with DEBRA Ambassador Dean Clifford joining participants on the morning. Similar community walks are being held in Sydney and Melbourne the same morning.

Dean Clifford with his parents at the 2025 Brisbane Walk for Wings.
Money raised helps fund DEBRA Australia’s essential programs, including specialist EB in-home nursing, psychological counselling, family respite, practical medical supplies, and national advocacy.
For those unable to join at Shorncliffe, virtual registrations allow supporters anywhere to clock their own kilometres or set personal fundraising challenges throughout EB Awareness Week.
Photos: Jo Sturgess, DEBRA Australia, from the 2025 Brisbane Walk for Wings.
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